To celebrate the start of this long holiday weekend, we wanted to share the below picture of Charlotte Gray who recently reached a childhood milestone–the loss of her two front teeth! As Gordon Gray previously mentioned, not only are we looking to enroll and fund additional patients in the trial, we need to continue to help Charlotte as she is working hard every day to regain the skills she lost prior to treatment. We are confident that the treatment has stabilized her, but we need to do more to help her. We are hoping to fund studies into treatments which strengthen and rebuild weakened or broken connections in the brain, which is what Charlotte needs. We have identified the team to do it, but of course we need funding for this as well.
Yesterday we met with our foundation funded science team and discussed our next steps for research and treatment. Without your efforts, this type of research would not be possible. As we head into the holiday weekend, we wanted you all to know that we are so grateful for your continued support. Together we will find a cure!